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Real People. Real Stories.

Real Connections.

The RNS Peer Forum

Hear from real people who are benefiting from the RNS® System and have volunteered to share their experiences.

Every person’s seizures are different and individual results will vary. *

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  • couple smiling

    Susan and Paul's Story

    Susan and Paul's Story

    anemptytextlline

    I’m Susan Hogue and I’m mom. My son is Paul and he’s had epilepsy for almost 30 years now.
  • man

    Danny's Story

    Danny's Story

    anemptytextlline

    My name is Danny. I’m 47 years old and I’ve had epileptic seizures for most of my life starting when I was 12 years old. Things...
  • woman

    Erica's Story

    Erica's Story

    anemptytextlline

    Hi, my name is Erica, and I had my RNS System placed in 2016. My struggle with epilepsy started about 9 years ago. I was...
  • woman smiling

    Heather's Story

    Heather's Story

    anemptytextlline

    My name is Heather. I am 30 years old and I live in North Carolina. I had my first seizure during my senior year of high...
  • man smiling

    Will's Story

    Will's Story

    anemptytextlline

    My name’s Will and I was born in 1975. Growing up, my visual memory was not very good; I didn’t enjoy reading books because I’d forget...
  • man

    John's Story

    John's Story

    anemptytextlline

    I experienced my first seizure in August, 1991. I had just graduated from the University of Wisconsin with my bachelor’s degree and was headed down...
  • woman smiling

    Kimberly's Story

    Kimberly's Story

    anemptytextlline

    At 26, out of nowhere Kimberly Bari suddenly started having seizures and debilitating anxiety. Fate brought her to UCSF Medical Center where doctors have been...
  • woman smiling

    Chrissy’s story

    Chrissy’s story

    anemptytextlline

    My name is Christine. I live just north of Denver, Colorado with my husband and two small children. I got married in 1998 and moved...
  • woman smiling

    Christine's Story

    Christine's Story

    anemptytextlline

    My name is Christine. I’m 54 years old and have always lived in Massachusetts. I’m married with five children and one granddaughter. When the kids were...
  • man

    Erick's Story

    Erick's Story

    anemptytextlline

    I had my first seizure in March 2007, about a month before I turned 19 years old. I was attending a technical college at the...
  • couple smiling

    Ian's Story

    Ian's Story

    anemptytextlline

    My name is Ian Olsen, I am 27 years old and began having seizures at age 11.
  • woman smiling

    Kathleen's Story

    Kathleen's Story

    anemptytextlline

    My parents were the first ones to know about my condition, and I didn’t say much to my family because I was kind of embarrassed.
  • man smiling

    Richard's Story

    Richard's Story

    anemptytextlline

    Hi, my name is Richard Lopez, I have epilepsy and I’ve had epilepsy since I was 13. I got the RNS System on June 11th,...
  • woman smiling

    Connie's Story

    Connie's Story

    anemptytextlline

    My name is Connie. I’ve had epilepsy for about seven years now and I’ve had the RNS for about three months.
  • woman smiling

    Courtney's Story

    Courtney's Story

    anemptytextlline

    My name is Courtney Derr. When I was 23 years old, I started having partial complex epileptic seizures. When a seizure began, I would feel an...
  • woman

    Nancy's Story

    Nancy's Story

    anemptytextlline

    My name is Nancy. I live in Erie, Pennsylvania alongside Lake Erie. I worked in medicine for over 30 years. I was...
  • couple with two kids

    Jason's Story

    Jason's Story

    anemptytextlline

    My name is Jason. I am 35 years old and I live near Tampa, Florida with my wife and two children.
  • woman

    Janie's Story

    Janie's Story

    anemptytextlline

    My name is Janie. I live in Georgia with my husband and two children. Epilepsy has limited my life in all sorts of ways.
  • woman smiling

    Kim's Story

    Kim's Story

    anemptytextlline

    I was six months old when it was first realized something was wrong. I was running a fever and my mother took me to the...
  • two men smiling

    Tim's Story

    Tim's Story

    anemptytextlline

    When my son, Gabe, was 4 years old, his mother and I got divorced. After that, Gabe lived with his mom, so he and I...
  • man smiling

    Drew's Story

    Drew's Story

    anemptytextlline

    When I was twelve, a large schwannoma tumor was removed from the right frontal lobe of my brain. A few months after the surgery, my...
  • woman smiling

    Carolyn's Story

    Carolyn's Story

    anemptytextlline

    Hi my name is Carolyn and when I was 35 years old, I began to have grand mal seizures. I went to...
  • woman smiling

    Mollie's Story

    Mollie's Story

    anemptytextlline

    My name is Mollie, I’m 24 and I live outside of Atlanta. I live in the same small town where I grew up. It’s the...
  • man smiling

    Josh's Story

    Josh's Story

    anemptytextlline

    My name is Josh. I’m 41 years old. I’m a Texan – I grew up in Amarillo and then went to school at Texas Tech...
  • woman

    Emily's Story

    Emily's Story

    anemptytextlline

    My name is Emily. In 2006, I was in a car accident during my senior year in high school. After that, I started having ‘staring...
  • woman smiling

    Ouida's Story

    Ouida's Story

    anemptytextlline

    I was 29 years old and had been living and working in China for about a year when I had my first generalized tonic-clonic seizure....
  • woman smiling

    Kaeti's Story

    Kaeti's Story

    anemptytextlline

    My name is Kaeti. I’m 29 and I live in Anacortes, on the coast of Washington State. I had my first seizure when I was...
  • woman

    Paula's Story

    Paula's Story

    anemptytextlline

    Talk to this Ambassador My name is Paula. The first time I had a grand mal seizure, I was 19 years old. I...
  • woman smiling

    Tyler's Story

    Tyler's Story

    anemptytextlline

    In the autumn of 2012, I suddenly started to stutter. I spoke with a lisp when I was a child, so at the time my...
  • couple interviewing

    Our Stories - Volume II

    Our Stories - Volume II

    anemptytextlline

    A collection of video stories from Connie, Ian, Luisa, Susan and Paul, Ariceli and Richard, and Brianna
  • Christina

    Chris's Story

    Chris's Story

    anemptytextlline

    The first seizure that I can remember happened when I was about 8 years old. I didn’t understand what it meant, but suddenly I had...
  • man smiling

    Michael's Story

    Michael's Story

    anemptytextlline

    My name is Michael, and I live in Texas. I have been living with epilepsy for more than 20 years. My epilepsy was likely caused by...
  • woman smiling

    Tracey's Story

    Tracey's Story

    anemptytextlline

    One summer they found a cavernous malformation and then they did surgery on that, and it was the scar tissue from that surgery that caused...
  • man

    Don's Story

    Don's Story

    anemptytextlline

    My name is Don. I live in Chicago where I work as a designer at an engineering firm. I had my first grand mal seizure when...
  • family

    Helen and Marshall's Story

    Helen and Marshall's Story

    anemptytextlline

    We first noticed Marshall was having incidents when he was about two years old and at age three, he was diagnosed with epilepsy. He was...
  • woman smiling

    Adison's Story

    Adison's Story

    anemptytextlline

    My name is Adison. I’m 23 years old and live near Sacramento, California. I started having seizures when I was 11 years...
  • man smiling

    Ricky's Story

    Ricky's Story

    anemptytextlline

    My name is Ricky and I’ve had RNS System for about ten months. I used to suffer from a lot of grand...
  • man

    Carlo's Story

    Carlo's Story

    anemptytextlline

    My name is Carlo I am 28, and I have had epilepsy for 28 years. My childhood was sprinkled with periods of activity and inactivity.
  • woman smiling

    Luisa's Story

    Luisa's Story

    anemptytextlline

    My name is Luisa Fields and I am 37 years old. I first started having seizures when I became pregnant with my first son when I...
  • woman with bird

    Tammey's Story

    Tammey's Story

    anemptytextlline

    Hello! My name is Tammey and I am a Registered Nurse Educator, wife, and mother. On October 07, 2007 at 4AM, my life as I knew...
  • man

    Kim's Story

    Kim's Story

    anemptytextlline

    My name is Kim. I live in a small town in New Hampshire. When you have epilepsy and you live in a small town, it...

*Talk with an epilepsy specialist to determine if the RNS System is right for you. RNS Ambassadors do not work for NeuroPace and are unpaid volunteers. They cannot give medical advice or offer any specific recommendations about treatments, doctors or hospitals. See important safety information.

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Step 1 of 7

14%
    The RNS System is for individuals 18 and older who have focal epilepsy and have tried two or more medications without finding seizure control.
  • Based on your answers, your patient might benefit from the RNS System.

    Get your profile and a list of questions to ask your doctor.

  • Unfortunately it appears your patient is not an appropriate candidate for the RNS® System at this time.

  • The RNS® System is intended for patients who have undergone diagnostic testing that localized no more than 2 epileptogenic foci.

    If your patient has not undergone diagnostic testing, search here to find a comprehensive epilepsy center that can evaluate your patient, including determining if the RNS System is right for them.

  • If you are interested in learning more about the RNS® System, you can have an RNS® System professional contact you by filling out the form below:

  • By filling out this form, you are agreeing to the terms of our privacy policy. This form is intended for US residents only.

    By clicking submit, you are agreeing to receive communications from NeuroPace. You can unsubscribe at any time.

    * Required fileds

Share your Story: Terms and conditions

By filling out the form and submitting your story (and/or photograph), you are agreeing to the following:

  1. NeuroPace may review the information and any photographs you provide for potential publication on our website.
  2. If NeuroPace decides to use your story, we will contact you and ask you to sign a release for a version of your story to be used on the NeuroPace website, Facebook, Instagram, Twitter and/or LinkedIn. Unless you sign the release, we will not publish the story, your name, or the photographs you provided.
  3. Regardless of whether we publish your story, we will add your name and e-mail address to the NeuroPace email list to hear from us about product updates, upcoming events and other relevant information. We will not sell your information to third parties. 
  4. Our use of your information is subject to our Privacy Policy, which you can access here.
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